Improving the quality of life for people with ALS: The challenge ahead.

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  • Additional Information
    • Author-Supplied Keywords:
      ALS
      MANAGEMENT
      PSYCHOSOCIAL
      QUALITY OF LIFE
    • Abstract:
      In tandem with recent progress in basic and clinical research in amyotrophic lateral sclerosis (ALS), clinical care and management has improved substantially. Key processes and practices have been established and are specified in current ALS Practice Parameters; the international ALS databases identify the current status of care and management given by physicians. A number of prospective clinical management research studies are now well underway to establish the effective utility of enteral feeding, assistive ventilatory device, and exercise in patients with ALS. One of the main research objectives in the clinical management of ALS is to improve patients' quality of life. For patients with ALS, only comprehensive multidisciplinary care can effectively improve their overall quality of life from diagnosis to death. This paper will briefly review a number of factors that must be considered if we are to improve the quality of life for these patients, including comprehensive medical management, patient education, the importance of hope, the role of the health care professional, and the patients themselves. (ALS 2000; 1: 329–336). [ABSTRACT FROM AUTHOR]
    • Abstract:
      Copyright of Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
    • Author Affiliations:
      1Director, Eleanor & Lou Gehrig MDA/ALS Center, The Neurological Institute, Columbia-Presbyterian Medical Center, New York, NY, USA
      2Clinical Administrator, Eleanor & Lou Gehrig MDA/ALS Center, The Neurological Institute, Columbia-Presbyterian Medical Center, New York, NY, USA
    • ISSN:
      1466-0822
    • Accession Number:
      10.1080/146608200300079464
    • Accession Number:
      4801963
  • Citations
    • ABNT:
      MITSUMOTO, H.; BENE, M. D. Improving the quality of life for people with ALS: The challenge ahead. Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders, [s. l.], v. 1, n. 5, p. 329–336, 2000. DOI 10.1080/146608200300079464. Disponível em: http://widgets.ebscohost.com/prod/customlink/proxify/proxify.php?count=1&encode=0&proxy=&find_1=&replace_1=&target=http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=a9h&AN=4801963&authtype=sso&custid=s5834912. Acesso em: 21 jan. 2020.
    • AMA:
      Mitsumoto H, Bene MD. Improving the quality of life for people with ALS: The challenge ahead. Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders. 2000;1(5):329-336. doi:10.1080/146608200300079464.
    • APA:
      Mitsumoto, H., & Bene, M. D. (2000). Improving the quality of life for people with ALS: The challenge ahead. Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders, 1(5), 329–336. https://doi.org/10.1080/146608200300079464
    • Chicago/Turabian: Author-Date:
      Mitsumoto, Hiroshi, and Maura Del Bene. 2000. “Improving the Quality of Life for People with ALS: The Challenge Ahead.” Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders 1 (5): 329–36. doi:10.1080/146608200300079464.
    • Harvard:
      Mitsumoto, H. and Bene, M. D. (2000) ‘Improving the quality of life for people with ALS: The challenge ahead’, Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders, 1(5), pp. 329–336. doi: 10.1080/146608200300079464.
    • Harvard: Australian:
      Mitsumoto, H & Bene, MD 2000, ‘Improving the quality of life for people with ALS: The challenge ahead’, Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders, vol. 1, no. 5, pp. 329–336, viewed 21 January 2020, .
    • MLA:
      Mitsumoto, Hiroshi, and Maura Del Bene. “Improving the Quality of Life for People with ALS: The Challenge Ahead.” Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders, vol. 1, no. 5, Dec. 2000, pp. 329–336. EBSCOhost, doi:10.1080/146608200300079464.
    • Chicago/Turabian: Humanities:
      Mitsumoto, Hiroshi, and Maura Del Bene. “Improving the Quality of Life for People with ALS: The Challenge Ahead.” Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders 1, no. 5 (December 2000): 329–36. doi:10.1080/146608200300079464.
    • Vancouver/ICMJE:
      Mitsumoto H, Bene MD. Improving the quality of life for people with ALS: The challenge ahead. Amyotrophic Lateral Sclerosis & Other Motor Neuron Disorders [Internet]. 2000 Dec [cited 2020 Jan 21];1(5):329–36. Available from: http://widgets.ebscohost.com/prod/customlink/proxify/proxify.php?count=1&encode=0&proxy=&find_1=&replace_1=&target=http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=a9h&AN=4801963&authtype=sso&custid=s5834912